Patient forward: comparing ICER and PCORI use of patient feedback
As value-based healthcare grows, healthcare stakeholders look to certain organizations that produce comparative effectiveness evaluations to make better-informed decisions in a resource-constrained environment. But many of these organizations, such as the Institute for Clinical and Economic Review (ICER), do not sufficiently incorporate the patient voice in their assessments. ICER recently addressed this concern by updating their framework by adding a Patient Engagement Program. Other organizations, such as, Patient-Centered Outcomes Research Institute (PCORI), specifically focuses on topics most important to patients and actively engages patients throughout the research process.
We take a look at the differences and similarities between PCORI and ICER approaches to incorporating patients in research and the impact on the results by looking at assessments conducted by each organization in 2 therapeutic areas: rheumatoid arthritis (RA) and sickle cell disease (SCD).